Title: 'Connecting EHDI Data to an Electronic Health Information Exchange'
Track: 4-Medical Home
Keyword(s): Medical Home, Health Information Exchange (HIE), data sharing
Learning Objectives: Participants will be able to evaluate their state's readiness to connect newborn screening information to a Health Information Exchange.


Over the last decade most states have developed a number of electronic public health and health care information systems. These include Early Hearing Detection and Intervention (EHDI), Newborn Laboratory Information Systems (blood spot / heelstick screening), Immunization Information Systems and others. Each program is typically responsible for collecting and maintaining their own data and controlling the access policies for that data. Recently, a number of states are finding ways to improve data sharing in an effort to decrease loss to follow-up and improve care coordination for children and families with hearing loss. This presentation will highlight Utah’s efforts to link newborn screening information to the statewide Health Information Exchange (HIE) and provide electronic access (of screening and follow-up information) to the child’s Medical Home.
Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online.
Handouts: Handout is not Available
Richard S. Harward - Utah Department of Health
     Credentials: Utah EHDI Director URLEND Audiology Coordinator Licensed Audiologist
     Other Affiliations: University of Utah School of Medicine Adjunct Faculty Utah State University Center for Person with Disabilities Adjunct Faculty Utah St
      Dr. Harward is currently the Director of the EHDI Program in Utah and the Program Manager for the Utah Department of Health's Specialty Services Program in the Children with Special Health Care Needs Bureau. He is also the Program Manager for the UDOH Child Health Advanced Records Management Project (CHARM), which involves the development of an integrated data sharing network to track and monitor outcomes for Utah children and their families. He serves as the Discipline Coordinator (core faculty) for Audiology with the Utah Regional Leadership in Neurodevelopmental Disabilities (URLEND)Program. His background includes three decades in clinical and administrative positions in private health care and public health. He has adjunct faculty appointments in the Communicative Disorders Department at Utah State University, and at the University of Utah School of Medicine. Dr. Harward continues to provide clinical services for infants and pediatric patients and their families through the CSHCN clinics.
Stephen W. Clyde - Utah State Univ.
     Credentials: Ph.D.
      Professor Clyde (Computer Science, Utah State University) is the architect and developer of the CHARM data integration system and is the current IT contractor for the UDOH cHIE Project. He has been the principal investigator for numerous large database projects funded by federal, state, and private agencies. Dr. Clyde is currently a technical advisor to the Public Health Informatics Institute (PHII).