Title: 'Delivering EHDI Services to Diverse Populations'
Track: 1-EHDI Program Enhancement
Keyword(s): diversity, cultural and linguistic diversity, loss to follow-up
Learning Objectives: Understand barriers faced by culturally and linguistically diverse families of children with hearing loss when accessing EHDI services. Compile possible solutions and suggest courses of action that may help to decrease loss to follow-up/loss to documentation rate among diverse populations in the EHDI system


EHDI programs across the United States have been playing an essential role in helping to identify children born with hearing loss. However, in 2009, according to CDC data only 55.4 % of the children who screened positive were reported to have received recommended follow up services such as diagnostic audiologic evaluation. It is believed that many of the factors that are common among culturally and linguistically diverse (CLD) communities, such as poverty, low levels of education, language barriers, and lack of health insurance, may play an important role in this issue In order to better define the “loss to follow-up” issue among CLD populations and understand hidden challenges EHDI Coordinators face when providing services to diverse populations, the CDC-EHDI Diversity Committee developed a survey to collect information about local Early Hearing Detection and Intervention programs and the work that these programs are doing to reach CLD families. The survey was disseminated to 50 states and 8 U.S. territories via Survey Monkey. This presentation will describe the results of the survey, identify possible causes of loss to follow-up/loss to documentation among diverse groups around the country, compile possible solutions and suggest courses of action that may help to decrease loss to follow-up/loss to documentation rate among diverse populations in the EHDI system
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Handouts: Handout is not Available
Claudia Gaffney - CDC
     Credentials: MPH,CHES
      Claudia Gaffney joined the Early Hearing Detection and Intervention (EHDI) Team at the Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD) in 2004. In this position she has developed materials and programs to help educate minorities and expand a public health initiative within hard-to-reach populations by producing educational materials in Spanish, disseminating critical information and creating partnerships at both state and national level. Prior to her employment at CDC, she created, supervised and evaluated oral health prevention programs for rural communities in her home county of Colombia. She received her degree in Dentistry from Autonoma University of Manizales, Colombia in 1996 and a Master’s degree in Public Health from Mercer University in 2004.
Susan Chacon - NM Department of Health
     Credentials: MSW, LISW
     Other Affiliations: Title V Children with Special Health Care Needs New Mexico Chair EHDI Diversity Committee
      Susan Chacon received her BS in Public Health from the University of Massachusetts and her MSW from Boston University and has worked as a professional social worker for over twenty years. Her experience includes advocating for and assisting diverse populations within the Boston metro area to access health care and providing mental health services to children in rural Alaska. From 2001-2010, Ms. Chacon oversaw the EHDI Program within the NM Department of Health and is currently the NM Title V Children and Youth with Special Health Care Needs Director. In 2005 she became the Chair of the EHDI Diversity Committee, initiated by the CDC to address disparities minorities and underrepresented populations face when accessing EHDI services. Ms. Chacon has been a member of the Community of Learners with the National Center for Cultural Competence of Georgetown University for the past two years and works to promote culturally and linguistically equality.