Title: 'The Whole Child: EHDI within NYS Child Health Information Integration '
Track: 5-Follow-up, Tracking, and Data Management
Keyword(s): online reporting; integrated information system; New York; medical home
Learning Objectives: 1. describe the design of the EHDI-IS in NYS 2. describe interoperability efforts in NYS 3. Generalize lessons learned in large scale informatics development


With nearly a quarter of a million births annually, New York State faces a formidable challenge in developing a real time online information system to capture pertinent EHDI data. The online system is being deployed within a larger context of child health information integration in order to promote the importance of hearing loss within the medical home and provides primary care providers with “one-stop shopping” to individual data on the babies and children they serve. It is expected that having ready access to screening information will result is a significant decrease in loss to follow up. This system also provides opportunities for epidemiological research. This session will describe the efforts and progress that have been made in the creation and operation of this integrated information system.
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Candace Adams Grossjohann - NYSDOH
     Credentials: PhD
      Dr. Adams Grossjohann currently serves as the Director of the Eayly Hearing Detection and Intervention Program within the Bureau of Early Intervention in New York State. Dr. Adams Grossjohann is a psychologist who has worked with children with special needs and their families for 15 years and has been an integral component in the NYS early intervention system and an advocate for chidlren and families with hearing loss.