'Congenital Cytomegalovirus (CMV) Update Panel Presentation'

The Centers for Disease Control and Prevention (CDC) report that one in every 150 children is born with congenital CMV (cytomegalovirus). CMV is the most common congenital infection in the United States and the most common cause of birth defects and developmental disabilities. More children will have disabilities due to congenital CMV than other well-known infections and syndromes, including Down syndrome, fetal alcohol syndrome, spina bifida, and pediatric HIV/AIDS. Because congenital CMV goes unrecognized, undiagnosed, and untreated, chances are you have worked with a child born with congenital CMV probably more often than you realize. Stop CMV is working to raise awareness and provide information about CMV and the impacts it can have on a child as they grow and develop. CMV is a silent, stealth epidemic that needs the public's attention and efforts in order to advance solutions and save future babies from birth defects and development disabilities. But a 2008 study found that only 14% of women had heard of CMV. Since 2003, Stop CMV has been fostering congenital CMV awareness via internet and public awareness campaigns. The CMV Action Network is comprised of families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus. Stop CMV is the world's largest CMV organization, dedicated to preventing and eliminating congenital CMV and improving the lives of all people affected by congenital CMV. In recent months, Stop CMV has launched the first national congenital CMV grassroots advocacy program and, in June, the United States Senate passed legislation recommending that “more effort be taken to counsel women of childbearing age of the effect this virus can have on their children'.

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Presented by Karen Fowler, Mark Schleiss, Janelle Greenlee

Janelle Greenlee is the mother of four children, including a set of 8-year-old twin daughters born with congenital CMV. She is the founder and president of Stop CMV-The CMV Action Network, the world's largest non-profit organization dedicated to preventing and eliminating congenital CMV and improving the lives of all people affected by congenital CMV. For more information, visit StopCMV.org.

Regency B
Sunday March 4, 2012
2:00 PM - 5:00 PM