Title: 'Tracking Babies Along the 1-3-6 Journey – The Tennessee EHDI Information System'
Track: 6 - Follow-up, Tracking and Data Management
Keyword(s): Newborn hearing screening, surveillance, follow-up, information system
Learning Objectives:
  1. learn about the Tennessee EHDI Information System
  2. identify potential data systems that can be used for tracking hearing screening and intervention.


In 2008, Tennessee passed the newborn hearing screening law, known as Claire’s Law, to require all birthing facilities to conduct hearing screening on newborns prior to discharge. In the same year, Tennessee received funding from the CDC EHDI program to build a surveillance information system to track newborn screening, diagnosis and intervention. In the past five years, the Tennessee EHDI Information System has integrated an array of datasets from various programs including the newborn screening program, the birth statistical system (which includes all births occurring in Tennessee, demographic information from the Patient Tracking Billing Management Information System (which includes all children under the age of five who use any public health services provided by the health department), the Women, Infants, and Children (WIC) data system (which has encounter and diagnosis information for WIC children) and the Immunization Registry (which has the most current primary care provider information). We will describe the datasets, the method of linkage, and some of the reports generated from the linked data records, as well as challenges and lessons learned.
Presentation: 1226YinmeiLi.pdf

Handouts: Handout_1226YinmeiLi.pdf
Yinmei Li - Primary Presenter
Tennessee Department of Health
     Credentials: MD, PhD
     Other Affiliations: None
      Yinmei Li has been employed as an epidemiologist with the Tennessee Health Department who has provided epidemiological support to the Department and its statewide partners for more than 11 years. She has been helping with the epidemiological needs of Tennessee's Newborn Hearing Program for six years, including being the project coordinator for three years for Tennessee's Early Hearing Detection and Intervention Information System (EHDI-IS), a program funded by the Centers for Disease Control and Prevention (CDC).

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.