Title: 'Implementing Electronic Reporting of Point-of-Care Newborn Screening Results: The Whos, Whats, Whens, and Hows'
Track: 6 - Follow-up, Tracking and Data Management
Keyword(s): electronic, reporting, messaging, implementation
Learning Objectives:
  1. 1) Define basic data messaging terminology as it relates to EHDI results reporting
  2. 2) Describe processes utilized to pave the way for implementation of an electronic reporting system for point-of-care newborn screening
  3. 3) Design an implementation plan for their own program


The recent addition of CCHD to the Recommended Universal Screening Panel in 2011 caused many newborn screening programs to reexamine how point-of-care testing results (for both EHDI and CCHD) are delivered from the birth facility to the program. Minnesota was one such program that took the addition of CCHD as an opportunity to also improve upon the EHDI program by implementing an electronic reporting system that would allow for real-time result reporting in order to improve upon follow-up efficiency and data integrity. We will present Minnesota’s point-of-care electronic reporting implementation planning. Key steps included: working with state offices of health information technology, meeting with electronic health record and health information exchange advisory groups, as well as finding nursing champions throughout the state. Utilizing these steps has allowed the Newborn Screening Program to get buy-in for implementation from IT staff and ensure preparedness by birth facilities and attendants. We will discuss: • Hospital survey outcomes and development of educational materials and training • General messaging terminology to prepare states to discuss needs • Project management tactics • Implementation steps, including stakeholder meetings, process planning, and implementation by facility and health care system. The addition and implementation of new reporting modalities often follow very different paths in different states. Because each state faces different challenges, and may enjoy different opportunities, sharing state experiences in implementation of electronic data systems is critical to improving the EHDI program nationwide.
Presentation: Monday_Coe_1135_KirstenCoverstone_1494.pdf

Handouts: Handout is not Available
CART: Topical Session 1- 1494.docx
Kirsten Coverstone - Author,POC
Minnesota Department of Health
     Credentials: AuD
      Kirsten Coverstone, AuD is Minnesota's EHDI statewide program Coordinator responsible for program planning, implementation, & evaluation of screening through diagnosis. She has focused her career specifically in the areas of newborn screening, diagnosis and follow-up. With a strong passion for quality improvement, she provides education and support to parents, professionals, and communities on Early Hearing Detection and Intervention.
Amy Gaviglio - Primary Presenter,Author
Minnesota Dept of Health
     Credentials: M.S., CGC
      Amy, a graduate from the Genetic Counseling Training Program at the University of Michigan, has been employed by the Minnesota Department of Health, Newborn Screening Program for the past 7 years. In her current position, Amy supervises the short term follow-up of blood spot, hearing, and pulse oximetry results, aids in statewide educational efforts on newborn screening and genetics, and works on genetics-related policy in the state. She is currently the co-chair of the public health special interest group for the National Society of Genetic Counselors, and a member of the APHL and NewSTEPS Short Term Follow-Up and CCHD Workgroups.

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.
Tony Steyermark - Co-Presenter,Author
Minnesota Department of Health
     Credentials: Ph.D.
      Tony Steyermark is the supervisor for the Newborn and Child Follow-Up program at the Minnesota Department of Health (MDH). The program is responsible for long term follow-up for infants and children with a condition detected by newborn screening. This includes ensuring proper care coordinator and ensuring that families have access to the services they need so as to maximize outcomes for the infant or child. Tony has been with the Minnesota Department of Health for 6 years, starting his public health career with the Newborn Screening Program. Before joining MDH, Tony taught Anatomy and Physiology, and conducted research in metabolic rate regulation, at the University of St. Thomas in St. Paul, MN.

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.
Kaitlin Houlihan - Author
Minnesota Department of Health
     Credentials: B.S
      Kaitlin holds a Bachelor of Science in Public Health from the University of Minnesota. In her current position at the Newborn Screening Program, she assists with hearing and pulse oximetry screening case management. She has played a role in training nursery staff on electronic reporting requirements and is invested in improving health informatics systems and access to healthcare.
Mark McCann - Author
Minnesota Department of Health
     Credentials: B.A.
      Program manager in Minnesota serving a terrific team of scientists and public health practitioners regarding the health protection effort of newborn screening in the State of Minnesota. Current impact is saving the lives and improving the medical outcomes for over 400 children annually. This includes program responsibilities for laboratory, operations, follow-up (which includes hearing screening & critical congenital heart disease screening), legislative, legal, policy, and health education for newborn screening.