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ABSTRACT INFORMATION
Title: 'Mandated Congenital Cytomegalovirus Testing: The Utah EHDI Experience ONE YEAR LATER'
Track: 1 - EHDI Program Enhancement
Keyword(s): cytomegalovirus, CMV, public health initiative, CMV testing, EHDI milestones
Learning Objectives:
  1. Name positive consequences to EHDI milestones as a result of early congenital CMV testing.
  2. Discuss lessons learned by Utah EHDI during the first 18 months of their CMV mandate.
  3. Apply Utah’s revised newborn hearing screening protocols to their own state’s program to make accommodations for congenital CMV testing

Abstract:

Congenital cytomegalovirus (CMV) is the most common non-hereditary etiology of hearing loss in children, accounting for approximately 33% of pediatric hearing loss in Utah. On July 1, 2013, Utah became the first state in the nation to mandate a cytomegalovirus (CMV) public health initiative. This law included a mandate for testing all babies who fail two newborn hearing screenings for congenital cytomegalovirus prior to 21 days of age. This mandate necessitated a shift in state newborn hearing screening protocols making the “1” in the national 1-3-6 EHDI guidelines no longer the goal in Utah. In order to meet the new CMV testing law, state protocols were revised so that all infants are screened and then re-screened (for those who fail the first screening) by 14 days of age to allow for CMV testing, if needed, to occur within the critical 21-day time window. Data gathered from the first 18 months of the mandate will be shared. This data will show how the focus on even timelier hearing screening and follow-up necessitated by the CMV testing mandate has increased EHDI milestone attainment in Utah. This positive effect is being seen in infants who received CMV testing whether or not the virus was detected. Lessons learned to date will be discussed so that other EHDI programs may benefit from Utah’s experience.
Presentation: This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online.
Handouts: Handout is not Available
CART: Topical Session 2- 1702.txt
PRESENTER(S) / AUTHOR(S) INFORMATION
Stephanie Browning McVicar - Primary Presenter,Author,POC
Utah Department of Health
     Credentials: Au.D., CCC-A
      Dr. McVicar is the Director of the Early Hearing Detection and Intervention (EHDI) Program, the Children’s Hearing Aid Program, and the Cytomegalovirus Public Health Initiative in Utah. She is Program Manager in the Utah Department of Health's Children with Special Health Care Needs Bureau in Salt Lake City. She is the Audiology Core Faculty member and Director of the Infant-Pediatric Audiology Program for the URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) Program, training future leaders in transdisciplinary family-centered care of children and adolescents with special healthcare needs. Clinically, Dr. McVicar is a pediatric audiologist. She is originally from Western New York and has over two decades of experience and knowledge in Audiology and the management of health care programs in both the public and private sectors. Dr. McVicar serves on the Board of Ethics in Audiology for the American Speech-Language-Hearing Association.
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.