Title: 'Ensuring Newborn Screening in Wisconsin: Reconciling Individual Screening Records with Individual Birth Certificates'
Track: 6 - Follow-up, Tracking and Data Management
Keyword(s): newborn screening; refusal; birth certificates; integrated data
Learning Objectives:
  1. describe WSB’s reconciliation project goals for both hospital and out of hospital births
  2. identify the matching process for records coming from multiple databases
  3. discuss the preliminary findings of this quality assurance project


Wisconsin Sound Beginnings (WSB) and the State Vital Records Office (SVRO) created a data exchange mechanism between WE-TRAC (WSB’s database) and the SVRO database. This data exchange allows WSB to match WE-TRAC records via the newborn screening blood cards with birth certificates via SVRO. This new collaboration provides, for the first time ever, the opportunity to evaluate whether the number of babies born in Wisconsin and the number of babies screened and reported to the State match. This blood card-birth certificate reconciliation project is part of an overarching quality assurance project for Wisconsin's integrated newborn screening program (blood, hearing and critical congenital heart disease) to document that all children born in Wisconsin receive newborn screening or have documented refusal. WSB has begun reconciling 2013 and 2014 data to 1-document the true number of babies born and screened in Wisconsin; 2-document characteristics of babies who don’t receive newborn screening and 3-ensure all babies born in Wisconsin receive a newborn screen or have a documented refusal. Preliminary results include: identifying areas with a high density of babies born but not screened; identifying babies who refuse metabolic screening but accept hearing (whose results were not previously reported); and identifying documentation, data transmission and other errors. Results from this collaboration are guiding WSB outreach and efforts.
Presentation: Poster_RebeccaMartin_1518.pdf

Handouts: Handout is not Available
CART: CART Transcription is not Available
Rebecca Martin - Primary Presenter,POC
     Credentials: MPH, IMH-E(II)
      Rebecca Martin, MPH, IMH-E(II) is the Outreach Specialist Coordinator at Wisconsin Sound Beginnings, working to support families and providers throughout EHDI. She has a decade of experience in health education, home visitation, case management, communications and advocacy. With a focus on high-risk, minority, immigrant and teen parents and their young children, Rebecca has provided intensive case management, intervention, education and support around parent-child relationships, child development, family stability, domestic violence and physical/emotional health. Rebecca completed her public health Preceptorship at a community health center in rural Wisconsin working with Amish and Hispanic communities. Rebecca served as a Peace Corps Volunteer, working to better maternal/child health and improve community organization. She is a graduate of UW-Madison’s Infant, Early Childhood and Family Mental Health certificate program and has earned her Level II Infant Mental Health Endorsement as an Infant Family Specialist for culturally sensitive, relationship-focused practice promoting infant mental health.

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.
Elizabeth Seeliger - Co-Presenter
Department of Health Services
     Credentials: Doctor of Audiology
      Elizabeth Seeliger, AuD, is the Wisconsin Sound Beginnings Program Director and has worked as a clinical audiologist in a variety of settings, helping guide children and families through the process of hearing loss diagnosis and intervention. Elizabeth has been a leader in developing a data, tracking and referral system; educational resources for hospitals and providers; and an interactive notebook for parents. Elizabeth spearheaded the initiative to enable Wisconsin homebirth midwives to provide UNHS. Elizabeth has also provided technical assistance and consultation locally and internationally on quality improvement in EHDI systems. Elizabeth currently sits on the board of directors for the WI Chapter of Families for Hands & Voices and Hands & Voices HQ. She is a graduate of UW-Madison’s Infant, Early Childhood and Family Mental Health Advanced Clinical Practice Certificate Program.

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.