Title: 'Tools to Help Prevent and Recover Lost to Follow Up'
Track: 6 - Follow-up, Tracking and Data Management
Keyword(s): lost followup cdc reporting data
Learning Objectives:
  1. Learn strategies to help prevent children from being lost to the State EHDI program.
  2. Learn about tools and approaches that can be used to identify infants that were considered lost.
  3. Learn how communication with audiologists and pediatricians can increase follow-up and reporting.


Lost to follow-up is a concept that can have a variety of definitions, impacting the sum total of babies needing attention. However it is defined, lost to follow-up is an urgent problem waiting for solutions. Heightened awareness regarding the number of children lost to hearing evaluation follow-up has encouraged states to look more closely at their data. Early in 2014, the Utah EHDI program obtained resources to investigate and address the different sources of lost to follow-up. This unique opportunity has resulted in the development of new tools to manage these newly-discovered problems. In this presentation we will discuss ways to help prevent children from being lost within state EHDI programs, including the following key elements: Software solutions, social media efforts, effective communication and staffing resources, parents' sentiments, data collection nuances and tracking obstacles. Tools for active tracking and follow-up, including data interoperation with other databases and communication with partners and stakeholders will also be covered in this presentation.
Presentation: Tuesday_Clements_1010_JamesFritzler_1561.pdf

Handouts: Handout is not Available
CART: Topical Session 4- 1561.rtf
Krysta Badger - Co-Presenter
Utah Department of Health
     Credentials: Data Manager, Newborn Hearing Screening Program, Utah Department of Health
      Krysta Badger is the Data Manager for the Newborn Hearing Screening Program at the Utah Department of Health. She has also worked as the LTFU Coordinator at the Utah Department of Health.

Financial -

Nonfinancial -
James Fritzler - Primary Presenter,POC
Utah State University
     Credentials: BS, Business Information Systems
     Other Affiliations: National Center for Hearing Assessment and Management
      James Fritzler is a Project Manager, Analyst and Software Developer with 13 years of EHDI Data Management experience. He has directed and managed iterative software development for complex, specialized medical data management systems. In doing this work he has collaborated with eight State Departments of Health in implementing data surveillance systems and leveraged SQL Server and the Microsoft .Net Framework to build Web-based and Windows-based data management software. Additionally, his consultation with world-wide screening equipment manufacturers has established and improved hearing screening data integration.

Financial -

Nonfinancial - No relevant nonfinancial relationship exist.
Stephanie Browning McVicar - Co-Presenter
Utah Department of Health
     Credentials: Au.D., CCC-A
      Dr. McVicar is the Director of the Early Hearing Detection and Intervention (EHDI) Program, the Children’s Hearing Aid Program, and the Cytomegalovirus Public Health Initiative in Utah. She is Program Manager in the Utah Department of Health's Children with Special Health Care Needs Bureau in Salt Lake City. She is the Audiology Core Faculty member and Director of the Infant-Pediatric Audiology Program for the URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) Program, training future leaders in transdisciplinary family-centered care of children and adolescents with special healthcare needs. Clinically, Dr. McVicar is a pediatric audiologist. She is originally from Western New York and has over two decades of experience and knowledge in Audiology and the management of health care programs in both the public and private sectors. Dr. McVicar serves on the Board of Ethics in Audiology for the American Speech-Language-Hearing Association.

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.