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ABSTRACT INFORMATION
Title: 'Timely Diagnosis of Hearing Loss and Early Intervention Services for Families of Infants and Toddlers with CMV.'
Track: 4 - Early Intervention
Keyword(s): CMV, Audiological tracking, early intervention
Learning Objectives:
  1. The importance of early diagnosis and ongoing management of hearing loss in children with CMV
  2. The necessity of ongoing early intervention and medical team collaboration
  3. Maintaining a high level of respect for the family and educating the community about the risks of CMV

Abstract:

One in five children born with CMV will develop permanent disabilities including hearing loss, vision impairment, cerebral palsy, seizures, and poor brain growth. It is estimated that 14% of children with CMV will develop some form of sensory neural hearing loss, which may be present at birth or may develop and progress during the first 72 months of life. Often, hearing loss is one of the first diagnostic markers for congenital CMV. The purpose of this presentation is to emphasize the importance of early diagnosis and ongoing management of hearing loss and the need for intensive and appropriate early intervention services to monitor overall development. Emphasis will be placed on providing parents and professionals with strategies and tools to assure optimal outcomes in speech-language, motor and cognitive developmental domains. Presenters will outline a framework and timeline for audiological and developmental monitoring and considerations for providing comprehensive early intervention and preschool transition services. In addition, presenters will emphasize the importance of respecting the family through the service provision process. Three case studies will be presented, outlining the journeys of 3 families who have navigated the CMV diagnostic and intervention process with their children.
Presentation: Tuesday_CarrollFord_300_MarjorieEdwards_1700.pdf

Handouts: Handout is not Available
CART: Topical Session 7- 1700.docx
PRESENTER(S) / AUTHOR(S) INFORMATION
Marjorie Edwards - Primary Presenter,Co-Presenter
Sound Beginnings
     Credentials: M.S.
      Marge Edwards is a Speech Language Pathologist for the Sound Beginnings birth to three program and has been providing services via Teleintervention to families for three years. She received her Bachelor’s and Masters degrees at Utah State University in Speech Language Pathology. As part of her Master’s Degree, she received specialized training in facilitating auditory learning and spoken language. Her interest in speech language pathology, hearing loss and auditory learning began when she had two sons with hearing loss. After growing up in Colorado, Saudi Arabia and Switzerland and living in Idaho, she has moved to Logan with her husband and two sons to be a part of the Sound Beginnings program.
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.
Elizabeth Preston - Co-Presenter
Utah State University
     Credentials: AuD
     Other Affiliations: Utah State University
      Elizabeth Preston, AuD, is an assistant clinical professor and pediatric audiologist at Utah State University. She provides direct services (diagnostic assessment, amplification, cochlear implant mapping, and newborn hearing screening), provides graduate student supervision, and teaches the Electrophysiology course. She also serves the children enrolled in Sound Beginnings, an auditory oral early intervention program and preschool for children who have hearing loss at USU. In this role, she collaborates closely with the teacher's and the speech language pathologists to provide comprehensive and coordinated services.
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.
Ali Devey - Co-Presenter
Utah State University
     Credentials: MA
      Ali Devey received her Master’s degree in Deaf Education from the University of Arizona. She has been teaching for the past 9 years. Her interest in the field developed upon learning that her own daughter was born with a severe to profound hearing loss. She has taught at Desert Voices Oral Learning Center, ASDB,was the Program Coordinator at Sound Beginnings at Utah State University, and is currently the toddler classroom teacher and the Family Support Specialist at Sound Beginnings. She has a passion for serving families who have children with hearing loss and feels it is a way she can “give back” after her daughter received such phenomenal services on her path to listening and spoken language.
      ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.