15th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
March 13-15, 2016 • San Diego, CA
3/15/2016 | 11:30 AM - 12:00 PM | Topical Session 5 | Sunset | 7 - Family Perspectives and Support
For many parents, navigating EHDI screening, re-screening, diagnostic, and early intervention process can be complicated and confusing. Each step presents opportunities for disruptions that can lead to loss to follow-up for children with hearing loss.
This presentation introduces a free smartphone app developed in partnership with the EHDI-PALS national advisory group (www.ehdipals.org). The purpose of the app is to provide parents with information, prompts, and reminders at each point of the 1-3-6 EHDI process. It reflects an innovative tool for placing immediately relevant information directly in a parent’s hand in a timely and efficient manner from birth through early intervention.
For example, when a child in a two-stage screening state fails their inpatient screen, hospital staff would explain the purpose of the app and install it on the mother’s smartphone prior to discharge. The app then automatically generates regular alerts to the mother reminding her to obtain a rescreen for her baby. These alerts include (1) links to information regarding the importance of rescreening, (2) links to support resources, and (3) an email option to send a message directly to their state EHDI program asking for help.
When the rescreening is completed, the parent indicates whether the baby passed, and if so the app automatically uninstalls itself. If the baby does not pass the rescreen, the process repeats with new alerts for a diagnostic evaluation. These include similar links to information on the importance of testing, support resources, and an email option requesting help from their state EHDI program.
When the diagnostic evaluation is completed, the parent indicates the results, with the process repeating one final time for early intervention resources should the parent indicate the baby has a hearing loss.
- At the end of the session, participants will be able to explain how to use smartphone technology to reduce loss to follow-up in the EHDI screening, diagnostic, and early intervention process.
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(Primary Presenter,Author), Hampden Academy, firstname.lastname@example.org;
Han Mason is a full-time student interested in applying computer technology to enhancing the lives of individuals with disabilities. He has previously presented on a smartphone app he developed examining child developmental growth trajectories at the 5th Congress of the European Acadamy of Paediatric Societies in Barcelona, Spain. This current presentation is based on his latest work with the EHDI-PALS advisory group.
Financial - No relevant financial relationship exist.
Nonfinancial - No relevant nonfinancial relationship exist.
(Author), University of Maine, email@example.com;
Dr. Liang has a PhD in Spatial Information Science and Engineering. For the last five years he has been a member of the IT team operating the Maine EHDI information system (ChildLINK). He is currently the lead IT specialist for the ChildLINK team. Dr. Liang is also the IT architect behind the EHDI-PALS system. He was personally responsible for programming the website and associated data system, and continues to develop and maintain the site for the EHDI-PALS group.
(Co-Presenter,Author), Centers for Disease Control and Prevention, firstname.lastname@example.org;
Winnie Chung has been an audiology provider in various clinical setting from 1990 to 2009. She began her involvement in EHDI in 2001 providing outpatient hearing screening and diagnostic for newborns at Kaiser Permanente San Francisco and Oakland. From 2004 to 2009, besides coordinating the Rhode Island state newborn hearing screening program, she also provided audiological services in the tertiary neonatal intensive care unit and managed the audiology outpatient clinic at Woman & Infants' Hospital. She joined CDC as a health scientist in April of 2009 providing technical assistance to state EHDI programs and investigating public health related issues for the CDC-EHDI team.