February 26-28, 2017 • Atlanta, GA


2/27/2017  |   3:20 PM - 3:50 PM   |  Losing Ground: Awareness of Congenital Cytomegalovirus in the United States   |  Regency V

Losing Ground: Awareness of Congenital Cytomegalovirus in the United States

One in 150 infants is born with cytomegalovirus (CMV) and one in 750 will have lifelong disabilities due to congenital CMV. Even though congenital CMV is the leading viral cause of congenital disabilities and the leading non-genetic cause of childhood hearing loss, most adults have never heard of it. This study analyzed data from the 2015 and 2016 United States HealthStylesTM surveys and compared them to data from previous studies. Most recent data show an awareness rate of 7% for US adults (5% for men and 9% for women), a statistically significant decrease from 2005 and 2010 studies. Multiple logistical regression analyses demonstrate that predictors of awareness include gender and education level. The presence of a child ages 0-5 in the household does not increase the chance that an adult in the household is aware of CMV. Latent class analyses of the HealthStylesTM data show several classes of adults with varying knowledge of conditions impacting newborns. For all classes, including one class with high knowledge of ten conditions, nine with lower prevalence than congenital CMV, CMV is the least known condition. This means that even the highest-educated, highest socioeconomic group is not aware of congenital CMV. CMV presents a large public health burden and further research needs to be focused on awareness and prevention of the negative sequela associated with congenital CMV. This presentation will include a discussion of how State EHDI programs can raise CMV awareness including examples from states and organizations.

  • Describe the importance of CMV awareness.
  • Discuss the how State EHDI programs can raise CMV awareness among highly-educated professionals and the general public.
  • Identify steps for increasing CMV awareness.


Handout is not Available



Sara Doutre (), NCHAM, saradoutre@gmail.com;
Sara Doutre is a PHD student studying sociobehavioral epidemiology at Utah State University. She has an MA in education policy studies and a BS in elementary and special education. A former special education teacher, she currently consults with state departments of education and health on special education policy. Her six-year-old daughter is deaf due to congenital cytomegalovirus.


Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.