16th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 26-28, 2017 • Atlanta, GA

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2/28/2017  |   3:45 PM - 4:15 PM   |  Importance and Progress in the Standardization of the Reporting and Analysis of EHDI Data   |  Hanover B

Importance and Progress in the Standardization of the Reporting and Analysis of EHDI Data

Congenital hearing loss affects one to three of every 1,000 live born infants. If left undetected, it may impact children through delayed speech and language development. To help avoid developmental delays and ensure that all deaf and hard of hearing (DHH) infants are identified and receiving services as early as possible, complete and accurate data is crucial. Despite substantial progress made over the years, some children are still falling through the cracks because they are not documented to have received recommended follow-up services. Lack of standardization in data reporting can contribute to this situation. By addressing this issue, jurisdictions can help ensure all DHH infants get identified early. The presentation will discuss reasons for lack of standardization in data reporting and measures that have successfully been taken at the state and national level to address this issue.

  • Understand how unidentified hearing loss is a public health issue
  • Understand how lack of standardization in data reporting contribute to this issue
  • Understand what measures have been taken to address this issue

Presentation:
15804_5614MarcusGaffney.pdf

Handouts:
Handout is not Available

Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference


Presenters/Authors

Marcus Gaffney (), CDC, MGaffney@cdc.gov;
Marcus Gaffney is a Health Scientist and serves as the lead for the CDC EHDI Team. He has over 14 years’ experience working in the area of newborn hearing screening and is responsible for overseeing a range of activities, including supporting the development of jurisdictional EHDI Information Systems, assessing progress towards national goals, providing technical assistance, and supporting research efforts. He holds a Masters of Public Health from Mercer University.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Xidong Deng (), CDC, XDeng@cdc.gov;
Dr. Xidong Deng is a Health Scientist with the CDC EHDI Team. She holds a PhD. in Computer Science and Engineering from Pennsylvania State University. Dr. Deng’s work with the EHDI team includes helping to develop national EHDI data systems, identifying strategies for integration of EHDI systems with electronic health records and state based systems, evaluation of state based EHDI systems, and the identification of privacy and security solutions for information exchange between state public health registries. Her current interests are in ontology, controlled vocabulary and data standards, EHR and PHR systems, and evaluation of health information systems.

ASHA DISCLOSURE:

Financial -

Nonfinancial -


Craig Mason (), University of Maine, craig.mason@maine.edu;
Craig A. Mason,Ph.D. is a Professor of Education and Applied Quantitative Methods at the University of Maine. He received his PhD in Clinical Child Psychology from the University of Washington and his interests include informatics, newborn hearing loss, and quantitative methods. Dr. Mason has been PI or Co-PI on $15 million in grants and contracts from the National Science Foundation, the National Institutes of Health, the Centers for Disease Control and Prevention, and the Department of Education. In addition, he has published, presented, and taught on multivariate analysis, multi-level modeling, epidemiological analysis, structural equation modeling, and growth modeling. He has been invited to present on methodology and informatics by the Centers for Disease Control and Prevention, the National Association for Public Health Statistics and Information Systems, the Department of Health and Human Services, the Association of Maternal and Child Health Programs, and other national organizations.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Suhana Alam (), CENTERS FOR DISEASE CONTROL AND PREVENTION, vns0@cdc.gov;
Suhana Alam serves as an epidemiologist with the CDC EHDI Team. She is responsible for analyzing EHDI data and providing technical assistance to states around tracking and surveillance. Prior to joining the CDC, she worked at the Environmental Protection Agency and the Dekalb County Board of Health. She holds Master of Public Health degree from the University of Georgia. Suhana was born with severe to profound hearing loss on both ears and wears hearing aids. She is fluent in American Sign Language and lipreads well.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Ashley Satterfield (), CDC, asatterfield@cdc.gov;
Ashley Satterfield is a current ORISE Fellow.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.