16th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 26-28, 2017 • Atlanta, GA

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2/28/2017  |   4:15 PM - 4:45 PM   |  Parents as EHDI Partners in Follow Up: Effectiveness of a Quality Improvement Model   |  Hanover E

Parents as EHDI Partners in Follow Up: Effectiveness of a Quality Improvement Model

In Texas half of infants who refer on the newborn screening fail to transition to diagnostic assessment and early intervention within the prescribed 1-3-6 timeline to achieve optimal outcomes. The Texas Department of State Health Services has partnered with Texas Hands & Voices to develop a quality improvement model to target Loss-to-Follow-Up, and representatives from both the state program and the parent organization will be delivering this presentation. The plan-do-study-act cycle has utilized professional parent consultants as “Follow Through Guides” to connect with EHDI families that fail to transition to diagnosis or early intervention. Each at-risk family is contacted by the parent of a child who is deaf/hard-of-hearing to facilitate follow up, and subsequent connections are made with providers to reinforce best-practices. An overview of the project development and implementation is provided, as well candid discussion of the challenges of agency-organization partnerships. The service delivery model created by the Follow Through Guide project effectively leverages parent-to-parent connections to support the continuum of care for EHDI families and facilitates timely transitions to diagnostic and early intervention services. Results of two ten-month cycles are reviewed. Data from 1500 families summarize barriers to timely follow-up including challenges inherent in the system and lives of families. Data from 100 providers summarize challenges to compliance based on protocol and management. The project model demonstrates the effectiveness of state agencies partnering with parent organizations, and illustrates unique contributions parents can make to EHDI programming and leadership. Outcomes include just-in-time supports for families and system-level changes that increased the number of families transitioning to early intervention by the target age of six months.

  • Participants will be able to list potential challenges in establishing a partnership between a parent organization and a state EHDI system, as well as strategies to overcome them.
  • Participants will identify barriers to EHDI follow up and potential parent driven supports.
  • Quality Improvement, LTF, Parent Support

Presentation:
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Handouts:
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Transcripts:
5824.rtf


Presenters/Authors

Sarah Wainscott (), Texas Woman's University, swainscott@twu.edu;
Sarah Wainscott is an Assistant Professor at Texas Woman’s University, with a background in both audiology and deaf education. She coordinates the Follow-Through-Guide Project, a partnership between Texas Hands & Voices and Department of State Health Services targeting loss to follow-up within EHDI. Sarah is also the parent of two children who are deaf.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Scott Smith (), Texas Department of State Health Services, Scott.Smith@dshs.texas.gov;
Scott Smith is the Program Specialist for EHDI services at the Texas Department of State Health Services.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Jennifer Peterson (), Texas Hands & Voices Guide By Your Side, jpeterson@txgbys.org;
Jennifer is a parent of a child who is hard of hearing, and is a leader in the Texas Hands & Voices Guide By Your Side Program. She engages in outreach to EHDI providers as a member of the Follow Through Guide Project.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.