February 26-28, 2017 • Atlanta, GA


2/28/2017  |   3:45 PM - 4:15 PM   |  An Emerging Role for Parent-to-Parent Support within EHDI Care Coordination   |  Hanover E

An Emerging Role for Parent-to-Parent Support within EHDI Care Coordination

The Follow Through Guide Project (FTG) has connected with over 1500 families in Texas who are at risk of loss-to-follow-up, identifying numerous barriers within the EHDI system, and demonstrating the effectiveness of parent-to-parent support at the earliest point in the continuum of care. While professionals certainly have the capacity to deliver information and follow up on care needs, there are characteristics unique to communication provided by parents that contributed to the success of the project. • Parents have credibility with other parents based on shared experiences. • Parents are accessible in ways that providers cannot be, both in terms of time and emotional availability. • Communication by parents is understandable, particularly for families who prefer Spanish. • Parents are to provide a “big picture” view of deafness and the myriad of issues related to raising a child who is deaf/hard of hearing. The implications of each of these features is explored in the context of the FTG project, with recommendations for integrating parent-to-parent support into care coordination for infant hearing healthcare. Barriers identified by families within the project are reviewed, as well as parent driven supports to address family and system challenges. The importance of carefully selecting and training professional parent Guides for such a role is emphasized, and a collaborative partnership between a Hands &Voices Guide By Your Side Program and a state EHDI program is described.

  • Participants will be able to describe barriers to EHDI follow-through for families.
  • Participants will be able to explain unique features of parent-to-parent communication and potential contributions to care coordination.
  • Participants will be able to summarize characteristics and training required for an effective parent guide.


Handout is not Available



Sarah Wainscott (), Texas Woman's University, swainscott@twu.edu;
Sarah Wainscott is an Assistant Professor at Texas Woman’s University, with a background in both audiology and deaf education. She coordinates the Follow-Through-Guide Project, a partnership between Texas Hands & Voices and Department of State Health Services targeting loss to follow-up within EHDI. Sarah is also the parent of two children who are deaf.


Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.

Michaela Hamaker (), Texas Hands & Voices Guide By Your Side, mhamaker@txgbys.org;
Michaela Hamaker is the Program Coordinator for the Texas Hands & Voices, Guide By Your Side Program. Michela works with Guides throughout the state to provide unbiased support to families with children who are deaf or hard of hearing, and developing partnerships with educators and professionals. Michaela is also the parent of two children who are deaf.


Financial -

Nonfinancial -