16th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 26-28, 2017 • Atlanta, GA

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2/27/2017  |   8:00 AM - 9:00 AM   |  Effective Family Engagement: A Panel on the Power to Influence EHDI Systems   |  Centennial Ballroom III & IV

Effective Family Engagement: A Panel on the Power to Influence EHDI Systems

The panel will focus on family engagement within EHDI programs, including experiences of how family engagement can improve the system as well as challenges met and challenges overcome. This presentation will share practical strategies regarding Family Engagement priorities within EHDI systems and how the participants of the conference can enhance their work in this area. Family members from all over the U.S. with diverse life experiences will be represented on the panel.

  • Participants will be able to identify strategies to enhance Family engagement in state/territory systems
  • Attendees will gain the perspective of families on how they can positively impact EHDI systems.
  • Participants will gain skills in how to overcome challenges in ensuring family engagement.

Presentation:
This presentation has not yet been uploaded or the speaker has opted not to make the presentation available online.

Handouts:
Handout is not Available

Transcripts:
5931.docx


Presenters/Authors

Janet DesGeorges (), Hands & Voices, janet@handsandvoices.org;
Janet DesGeorges lives in Boulder, Colorado with her husband Joe and is mom to three daughters, including Sara, who is deaf/hard of hearing. She co-founded and is part of the staff at Hands & Voices Headquarters, serving as the Executive Director since September 2011, having previously served as the Outreach Director since 2005 and as the Executive Director of the Flagship chapter of Hands & Voices in Colorado for almost 10 years prior to that. Janet has presented to groups worldwide about the experiences of families as they journey through life with a child with deafness or hearing loss. She is the author on the chapter for Family Support in the NCHAM e-Book, the co-author of the book Educational Advocacy for Students who are Deaf and Hard of Hearing: The Hands & Voices Guidebook, and many other publications. Ms. DesGeorges received a program certificate from the MCH Public Health Leadership Institute in 2011 at the University of North Carolina – Chapel Hill. As an EHDI Systems advocate, Janet believes in the principles and guiding philosophies of Hands & Voices towards a parent-driven, professionally-collaborative approach when supporting families in the early years. Professionals and parents can partner together to achieve appropriate outcomes for children who are deaf or hard of hearing. Her areas of interest include Leadership Development for parents who participate in systemic improvement; Deaf Education Reform and Improvement; Children’s Safety and Success(preventing child abuse and neglect); Early Hearing Detection and Intervention Systems; and Parent/Professional partnerships in Quality Improvement processes.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Djenne-amal Morris (), BEGINNINGS for Parents of Children Who areDeaf or Hard of Hearing, dmorris@ncbegin.org;
Djenne-amal N. Morris, BA, brings passion, humor and real life experience to her role as national parent/professional trainer, facilitator and motivational speaker whose view of the world not as it is, but as it could be. As a mother of an amazing son with CHARGE Syndrome she strives to build at atmosphere of support and empowerment for families of children with special needs and the professionals who serve them. This has led to her career working with families of with children with special needs in various roles as Women’s Ministry Leader, Family Specialist for the New England and North Carolina Deaf-Blind Projects, Parent Educator/Training Coordinator at BEGINNINGS for Parents of Children Who Are Deaf or Hard of Hearing and current Chairperson of the Board of Directors for Hands & Voices. Djenne and her husband provide consulting, trainings, workshops and coaching to families and professionals in the areas of family dynamics and special needs (www.todaywithdjenne.com). She lives in Knightdale, N.C. with her husband, Michael and have three children, a cat and a dog! Malik, 20, attends the Eastern North Carolina School for the Deaf. Imani, 21 is a senior at Abilene Christian Univ. in Texas, majoring in Global Studies. Her youngest, Zakiya, 15, is a high school sophomore. Djenne is an avid reader, fun-loving, and a newly published author (The Art of Collaboration: Lessons from Families of Children with Disabilities, 2016. Sense Publishers)

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Karen Wisinski (), Michigan EHDI Program, WisinskiK@michigan.gov;
Karen Wisinski is the Parent Consultant for MI-EHDI. In addition to providing insights as the parent of a child with hearing loss, she also coordinates the Guide By Your Side(TM) Program for Michigan Hands & Voices(TM). GBYS home visits have increased dramatically since she took over the program.

ASHA DISCLOSURE:

Financial - Receives Salary for Employment from Michigan EHDI.   Receives Salary for Employment from Michigan EHDI.  

Nonfinancial - No relevant nonfinancial relationship exist.


Laura Gramer (), ., n/a;
Laura Gramer and her family reside in Seattle, WA. They are deaf parents to two deaf sons. She has a Bachelor of Science degree in Occupational Therapy. Laura currently volunteers in WA Hands & Voices and Hearing Speech Deaf Center as board member. She served on various commissions and boards in Washington and Illinois. Laura and her family are involved in the deaf community.

ASHA DISCLOSURE:

Financial -

Nonfinancial -


Mariana Barquet (), Indiana Hands & Voices, marianabarquet@hotmail.com;
Mariana Barquet was born and raised in Mexico City, Mexico. She has lived in the United States for 12 years. She and her husband, Darren, were married in 2005, and are the proud parents of two beautiful children. Her son, Jack was born profoundly deaf and was diagnosed at 7 months with leukodistrophy. He was implanted with bilaterally Cochlear implants at 14 months of age. Mariana works as the Outreach Coordinator as well as the Parent Guide for Hispanic families in the State of Indiana, under the Guide by Your Side Program from Indiana Hands and Voices. Her biggest passion is to ensure that every Hispanic child with hearing loss in the State of Indiana receives qualified services that meet their needs and ensures successful outcomes.

ASHA DISCLOSURE:

Financial -

Nonfinancial -