16th ANNUAL EARLY HEARING DETECTION & INTERVENTION MEETING
February 26-28, 2017 • Atlanta, GA

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  |  Culturally Appropriate Public Health Materials on Cytomegalovirus (CMV) and Newborn Hearing Screenings for American Indian Communities in Utah

Culturally Appropriate Public Health Materials on Cytomegalovirus (CMV) and Newborn Hearing Screenings for American Indian Communities in Utah

The Utah Department of Health has numerous initiatives currently being promoted on the prevention and early intervention of hearing loss and developmental disabilities. Two such initiatives are the completion of newborn hearing screenings (NBHS) and improvement of community education and prevention methods for Cytomegalovirus (CMV), the leading cause of developmental disabilities, in pregnant women. Brochures dedicated to these topics are currently in circulation, however, those materials are not culturally appropriate for the American Indian communities in Utah. To resolve this issue, two brochures were developed: one for NBHS and another for CMV awareness and prevention. In this presentation, we will discuss the process of developing each brochure, including research on the American Indian culture and specific information pertaining to each of the twelve American Indian tribes. The presentation will also discuss the collaboration between our group and the Utah Indian Health Advisory Board in finalizing the brochures. Members of the Utah Indian Health Advisory Board reviewed the drafts of the NBHS and CMV brochures in November of 2016 and January of 2017. The board provided vital feedback and made the following suggestions: to create a poster focused on the definition of CMV and it’s prevention for their medical clinics and to update the speech and hearing section of their guidebook to new mothers, “Baby Your Baby.” Upon approval of the board, the brochures and CMV poster will be made available to each of the American Indian communities in Utah in both print and online versions.

  • Make EHDI materials more accessible to American Indian tribes.
  • Spread awareness about the importance of CMV and newborn hearing screenings.
  • Provide education on the prevention and screening process for CMV.

Presentation:
15804_6039CaileyMortensen.pdf

Handouts:
Handout is not Available

Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference


Presenters/Authors

Cailey Mortensen (), URLEND, cailey.mortensen@utah.edu;
I’m a graduate student at the University of Utah and I’m studying audiology. I was born and raised in Salt Lake City, and I developed a strong interest in the disability community once my sister was diagnosed with autism at the age of three. My sister is one of the reasons why I applied to be a part of the URLEND program along with the hope to learn how to work with multiple disciplines. In my spare time, I love spending time with my family, friends and with my dog, Daisy.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Kalley Ellis (), URLEND, ellikal2@isu.edu;
I am a graduate student at Idaho State University, and I am studying to become an audiologist. I currently live in Idaho, but I have also lived in Utah. I love the mountains and beautiful natural landscapes in both places. In my free time, I like to hike, spend time with family, and read a good book.

ASHA DISCLOSURE:

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Nonfinancial -


Lara Cilo (), URLEND, lcilo@uwyo.edu;
I am a graduate student studying Speech Language Pathology at the University of Wyoming. I am originally from Pennsylvania but moved to Wyoming four years ago to be close to the mountains. When I’m not in school, I live in Jackson with my husband and love to hike, mountain bike, and enjoy the beautiful outdoors.

ASHA DISCLOSURE:

Financial -

Nonfinancial -


Helene Kalala (), URLEND , helenekam32@gmail.com;
Helene, born and raised in both France and Democratic Republic of Congo (DRC); moved from Liberia with family to the USA in 2001 following war/political unrest in both Liberia/DRC. She attended pre-med school at the University of Kinshasa; completed a B.S Degree in Economics/minor accounting (University of Liberia, Monrovia); and a Masters of Social Work (University of Utah 2015). She is a member of UCEDD (University Centers for Excellence in Developmental Disabilities) Diversity Fellows; working on a Disability Project and currently works with Salt Lake County as a Family Resource Facilitator at the Youth Center. Worked at the African Development Bank as a Project/Research Assistant in Ivory Coast; volunteered as informal counselor to youth, young couples, and others; worked closely with children exploited through war, and interacted with sexually abused women and girls in Liberia. Her willingness and ability to listen, and supportive nature made a big difference to those people lives; and guided her to becoming a social worker later. She extensively traveled to the world (France, Belgium, England, Ireland, Ghana, Sierra Leone, Kenya, Ivory Coast, Uganda, Nigeria, Congo Brazza…) with husband’s diplomatic assignments. She is a multicultural global individual; likes to make a positive impact in other people's lives, especially women and children. She speaks English, French, Lingala, and Ciluba. She joined URLEND for knowledge exchange/become a skilled leader to help increase disability and information awareness within refugee populations in Utah by developing early identification of children with disabilities within refugee/immigrants populations.

ASHA DISCLOSURE:

Financial -

Nonfinancial -


Stephanie Browning McVicar (), Utah Department of Health, smcvicar@utah.gov;
Dr. Stephanie Browning McVicar is the Director of the Early Hearing Detection and Intervention Program, the Children’s Hearing Aid Program, and the Cytomegalovirus Public Health Initiative in Utah. She is Program Manager in the Utah Department of Health's Children with Special Health Care Needs Bureau in Salt Lake City. She is the Audiology Core Faculty member and Director of the Infant-Pediatric Audiology Program for the URLEND (Utah Regional Leadership Education in Neurodevelopmental Disabilities) Program, training future leaders in transdisciplinary family-centered care of children and adolescents with special healthcare needs. Dr. McVicar is a pediatric audiologist, an advocate for CMV testing in newborns, and passionate about the prevention of congenital CMV infection. She is originally from Western New York and has over 25 years of experience and knowledge in Audiology and the management of health care programs in both the public and private sectors. Dr. McVicar serves on the Board of Ethics for the American Speech-Language-Hearing Association.

ASHA DISCLOSURE:

Financial - No relevant financial relationship exist.

Nonfinancial - No relevant nonfinancial relationship exist.


Corinne Coleman (), URLEND, corinne.coleman@aggiemail.usu.edu;
I am a graduate student at Utah State University studying audiology. I personally have a bilateral hearing loss and received great benefit from EHDI (Early Hearing Detection & Intervention) programs and materials. Because of them I have been incredibly blessed academically and socially. I have dreamed of becoming an audiologist and an advocate for other children and families of those that have hearing loss. I love playing sports, anything that has to do with water and sunshine and spending time in nature. I find spiritual and mental rejuvenation when I ride my bike or go for a swim or lay in my hammock in the back yard. I am the second oldest of 6 children and am originally from Boise Idaho.

ASHA DISCLOSURE:

Financial -

Nonfinancial -