February 26-28, 2017 • Atlanta, GA


2/26/2017  |   10:00 AM - 12:00 PM   |  Action Planning: Raising Awareness of Congenital Cytomegalovirus Among Professionals and the Public   |  Learning Center

Action Planning: Raising Awareness of Congenital Cytomegalovirus Among Professionals and the Public

Across the country, momentum is building to increase awareness of congenital cytomegalovirus (CMV). CMV is the leading known cause of childhood hearing loss, yet very few adults (7%) have heard of it. Hearing loss due to CMV can be prevented and treated, when professionals and parents know about it. Since 2013, six states have passed legislation (Utah, Connecticut, Hawaii, Illinois, Texas, and Tennessee) requiring CMV education programs, CMV testing for newborns who fail the newborn hearing screening, or both. Additionally, many more states are raising awareness about CMV through educational campaigns without legislation. This active, planning session is divided into two segments. Segment one: attendees will receive an overview of legislation and educational campaigns. EHDI coordinators responsible for programs as well as CMV professionals will provide relevant examples. Segment two: attendees will work in small groups and use the large group to develop action plans for creating momentum around CMV awareness, identifying key stakeholders for relationship building and group thinking, and developing effective CMV messaging when promoting education and/or screening. Participants will be provided with an action planning template and other resources for pursuing, increasing, and/or refining CMV activity in their states. Specific materials will be provided related to legislative efforts and awareness programs, including social marketing methodology. Attendees will leave the session with an outline of a campaign including target audience, educational messages, deliverables, and a dissemination plan. This hands-on session is important for anyone (e.g., public health workers, policy makers, clinicians, researchers and parents) wishing to increase awareness about CMV through legislative or educational campaigns. Participants that are interested in working together are encouraged to attend with others from their state.

  • Identify key stakeholders for raising CMV awareness through education or screening.
  • Develop appropriate CMV educational messages for identified target populations.
  • Learn about existing resources available to help pass legislation and implement educational campaigns and provide examples of successful efforts.


Handout is not Available

CART transcripts are NOT YET available, but will be posted shortly after the conference


Janelle Greenlee (), National CMV Foundation, janelle@stopcmv.org;
Janelle Greenlee is the mother of four children, including a set of twin daughters born in 2003 with congenital CMV. She is a co-founder of the National CMV Foundation, a national non-profit organization dedicated to promoting awareness, providing access to resources, and sharing prevention information to eliminate congenital CMV. For more information, visit NationalCMV.org.


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Nonfinancial -