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NCHAM: National Center for Hearing Assessment and Management, Utah State University

Last Updated: 10/19/2010

National EHDI Resource Center Collaborating Agencies

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) is a non-profit membership organization that counts among its many objectives promoting detection of hearing loss in early infancy, as well as prompt early intervention and continued use of appropriate hearing aids. Other objectives are to collaborate with physicians, audiologists, speech/language specialists, and educators to promote educational, vocational, and social opportunities for individuals of all ages who are deaf or hard of hearing, gather and disseminate information on hearing loss, including its causes and options for treatment, and collaborate on research relating to auditory-verbal and auditory-oral communication.

The American Academy of Pediatrics (AAP), with approximately 60,000 members and 59 state-based chapters, is the nation's preeminent organization for assuring that young children receive high quality health care. AAP has endorsed hearing screening for all children before they leave the hospital.

a nurse testing an infant's hearing

The American Society for Deaf Children (ASDC) is an organization of families and professionals committed to educating, empowering, and supporting parents and families to create opportunities for their children who are deaf and hard of hearing in gaining meaningful and full communication access, particularly through the competent use of Sign Language in the home, school, and community. ASDC works to assure the highest quality programs and services for parents to make sound and informed choices to meet their children's educational, communication, personal, and social needs.

The American Speech-Language-Hearing Association (ASHA) is a professional and scientific association for more than 115,000 speech-language pathologists, audiologists, and speech, language, and hearing scientists in the United States and internationally. ASHA's mission is to promote the interests of and provide the highest quality of services for professionals in audiology, speech-language pathology, and speech and hearing science, and to advocate for people with communication disabilities.

The Association of Maternal and Child Health Programs (AMCHP) provides leadership to assure the health and well-being of all women of reproductive age, children, and youth, including those with special health care needs and their families. It is a national organization representing state public health leaders in maternal and child health and other interested individuals and organizations. AMCHP relies on strong partnerships with other public sector officials and agencies, families and advocates, research professionals, and a range of other key individuals and their organizations at the state and local levels. AMCHP publishes a bimonthly newsletter and convenes a yearly conference for planning, policy development, and dissemination of program information.

Association of University Centers on Disabilities’ (AUCD) mission is to advance policy and practice for and with people with developmental and other disabilities, their families, and their communities by supporting members in research, education, and service activities that achieve the AUDC vision.

Beginnings has served families in North Carolina as a non-profit organization since 1987. Beginnings was established to provide emotional support and access to information as a central resource for families with deaf or hard of hearing children, age birth through 21. Beginnings provides an impartial approach to meeting the diverse needs of these families and the professionals who serve them. These services are also available to deaf parents who have hearing children. The mission of Beginnings is to help parents be informed, empowered and supported as they make decisions about their child. In addition, Beginnings is committed to providing technical assistance to professionals who work with these families to help the children achieve full participation in society.

Boys Town National Research Hospital is one of the world's largest clinical and research centers dealing with disorders of hearing, speech, language and learning. Boys Town National Research Hospital offers deaf and hard of hearing children and their families a wealth of services ranging from pre-school programs, sign language classes and tutoring to printed materials and videos.

The Catalyst Center is an MCHB-funded national center dedicated to improving health care insurance and financing for children and youth with special health care needs (CYSHCN), providing resources to guide policies and practices pertaining to adequacy of financing for care.

Champions for Inclusive Communities is an MCHB-funded national leadership and resource center designed to support states and communities in organizing services so families of children and youth with special health care needs (CYSHCN) can use them easily and families are satisfied.

Community Health Association of Mountain/Plains States (CHAMPS) has as its mission to provide opportunities for education and training, networking, and workforce development to Region VIII community health centers so we canbetter serve our patients and communities.

Directors of Speech and Hearing Programs in State and Welfare Agencies (DSHPSHWA) was established in 1964 to promote awareness about communication disorders and the continued development of public health programs for the diagnosis and treatment of these disorders. Today, the organization is active in national maternal and child health issues and includes members from nearly every state.

Family Voices is a national organization that serves as a clearinghouse for information and education concerning the health care of all children with special health needs. With ten Regional Coordinators and a national membership of 20,000, they work to advocate for health care reform and policy that includes family-professional partnerships, cultural competence, and cost-effective, flexible, quality health care for children with special needs. Members work in public and private hospitals, public health programs, state capitals, and Washington, D.C., as well as serving on boards and task forces in partnership with health professionals and policymakers.

The Gallaudet University Genetics Program has provided genetic evaluation and counseling services to members of the Deaf community and other deaf and hard of hearing people for more than 20 years.Education is an important component of the genetics program.

Hands and Voices is a non-profit, parent-driven national organization dedicated to supporting families of children who are deaf or hard of hearing. Hands and Voices provides non-biased information about communication methodologies and believes that families will make the best choices for their child if they have access to good information and support. From American Sign Language to cochlear implants, Hands and Voices represents people from all different approaches to and experiences with deafness and hearing loss.

Head Start is a comprehensive child development program which serves children from birth to age 5, pregnant women, and their families. The Head Start program has a long tradition of delivering comprehensive and high quality services designed to foster healthy development in low-income children. Head Start grantee and delegate agencies provide a range of individualized services in the areas of education and early childhood development; medical, dental, and mental health; nutrition; and parent involvement. In addition, the entire range of Head Start services is responsive and appropriate to each child's and family's developmental, ethnic, cultural, and linguistic heritage and experience. Head Start is a child-focused program and has the overall goal of increasing the school readiness of young children in low-income families. Head Start Knowledge and Information Management Services (HSKIMS) and the online Early Childhood Learning and Knowledge Center (ECLKC) serve as a repository of information to support best practices.

Healthy and Ready to Work is an MCHB-funded national center that supports State Title V CSHN programs and their partners to improve and enhance health care transition for CYSHCN. The Center provides resources, information and technical assistance addressing te transition toadult systems and services including strategies to maintain health insurance and increasing the involvement of youth in health care decisions and policymaking. Their website includes tools and resources for providers, families and youth.

The Individuals with Disabilities Education Act (IDEA) Infant and Toddler Coordinators Association is organized as a not-for-profit corporation to promote mutual assistance, cooperation, and exchange of information and ideas in the administration of Part C and to provide support to state and territory Part C coordinators.

Joint Committee on Infant Hearing (JCIH) consists of representatives appointed by six major professional organizations with a commitment to identifying congenital hearing loss as early as possible. Created in the late 1960's at the suggestion of ASHA, membership also includes the American Academy of Otolaryngology - Head and Neck Surgery, the American Academy of Audiology, the American Academy of Pediatrics, the Council for Education of the Deaf, and the Directors of Speech and Hearing Programs in State Health and Welfare Agencies. JCIH recommendations on policy and practice are widely cited and have had a major impact on early identification of hearing loss.

Lions Club International is the world's largest service club organization that provides funding and support to a wide array of community development needs including vision services, youth program, environmental programs and health programs.

Louisiana State University Health Literacy Project provides education, patient care services, research, and community outreach. The Project is committed to educating physicians, basic scientists, residents, fellows and allied health professionals based on state-of-the-art curricula, methods, and facilities; preparing students for careers in health care service, teaching or research; providing state-of-the-art clinical care, including a range of tertiary special services, to an enlarging and diverse regional base of patients; and achieving distinction and international recognition for basic science and clinical research programs that contribute to the body of knowledge and practice in science and medicine; supporting the region and the State in economic growth and prosperity by utilizing research and knowledge to engage in productive partnerships with the private sector.

Marion Downs Hearing Center will provide services, resources, education and research to support the needs of individuals who are deaf or hard of hearing. Support will extend to their families as well. The vision for the hearing center is to develop important ideas and conduct research that will lead to significant experimental advancements.

The National Association of State Directors of Special Education (NASDSE) is a not-for-profit organization established in 1938 to promote and support education programs and related services for children and youth with disabilities in the United States and outlying areas. NASDSE activities aredesigned to provide professional support to its members and others interested in special education.

National Center for Cultural Competence (NCCC) is a component of the Georgetown Child Development Center housed within the Department of Pediatrics at Georgetown Medical Center. The mission of NICC is to increase the capacity of health care programs to design, implement, and evaluate culturally-competent service-delivery systems.

National Deaf Education Project (NDEP) was established to work toward the development of a quality communication and language-driven educational delivery system for students who are deaf or hard of hearing.

National Early Childhood Technical Assistance Center (NECTAC) was established in 1987 under federal legislation. It works with its Consortium Partners to support states, jurisdictions, and others to improve services and results for young children with disabilities and their families.

The National Initiative for Children’s Healthcare Quality (NICHQ) is an independent organization whose mission is to improve children’s health by improving the systems responsible for children’s healthcare.

The Northwest Regional Telehealth Resource Center (NRTRC) provides technical assistance in developing telehealth networks and applications to serve rural and underserved communities.

Worldways Social Marketing provides research, strategy, marketing and training services to public health organizations, not-for-profits, social enterprises, Foundations, NGOs and others to advance their programs through the use of new media.

Zero to Three is a national nonprofit organization that informs, trains and supports professionals, policymakers and parents in their efforts to improve the lives of infants and toddlers. Zero to Three’s Early Head Start National Resource Center (EHS NRC) is a storehouse of early childhood expertise supporting best practices in Head Start programs.