As part of the Video Scrapbook, there are 7 videos clips that deal with listening to parents issues related to EHDI. Transcripts of each video clip can be found below. Feel free to use any of the video clips in your own presentations.
File Size: 39 MB
Contents: 7 videos (.mpg), 1 text file (.txt) containing transcripts of videos
Transcripts of EHDI Scrapbook Video Clips
Video: Melisa Engel
Transcript: The girls are hearing impaired. They weren't identified until they were18 months old. At 10 months I suspected that one had a hearing loss. But I was told that I was a first time mother on three separate occasions when I had asked the pediatrician. I've since then gotten a new pediatrician and the one who I thought had normal hearing actually had to get tubes in her ears. It was identified from getting tubes in her ears that she had a hearing loss so that's how they were identified at 18 months of age.
Speaker: Melisa Engel
Transcript: I guess my big concern is a parent's voice. Listening to parents Just last week we had a child at 3 years old identified, a month ago a 6-years old identified. That's still very old identification for today's world.
Speaker: Candace Lindow-Davies
Transcript: What I would like people to know is that parents of children with hearing loss need to be respected. They have a voice. They have an infinite amount of wisdom. If they were listened to they could teach a lot to medical professionals, audiologist, educators. And so I would like to encourage everyone really to put parents at the table and to respect them just as much as any other professional interested in the health and outcome of children with hearing loss.
Speaker: Kim Sykes
Transcript: I think we need to listen to our parents and our families, and it may be another family member as well, not just the parent that has concern. Or it might be someone from their community. And we need to listen to that because they are with that child more than anyone else. They know their child better or their family member. We need to listen to them and not make a judgment as to well…are they really able to assess that child's hearing? Do I feel comfortable that they've assessed it? If they have any concern at all we need to go ahead and check that out for that family.
Speaker: Tom Tonniges
Transcript: I think one of the real side benefits of the Universal Newborn Hearing Screening activity is the fact that as pediatricians and as professionals the whole issue of "your child will outgrow it" or "don't worry about it, it's probably not a problem" has really…this newborn screening has really challenged that. I think that if you look in the past, very often family members, parents, picked up on the fact that the child couldn't hear long before the professional would even acknowledge that the family knew more about their child then they did. So I think a real benefit has been that hearing screening is a perfect example of being able to implement family-centered care at the practice level.
Speaker: Tom Tonniges
Transcript: I think that we've made really remarkable progress when we think in terms of how pediatrics as a profession is really working hard to be responsive to the needs of families. I think that's probably the area where we've made the greatest advancement; pediatricians are beginning to listen to families as partners in the health care of their children
Speaker: Betty Vohr
Transcript: I have learned so much along the way. I've learned from colleagues, working with audiologists, speech-language therapists, early interventionists, probably most important is parents. I've learned a great deal from them about being sensitive to the issues of having a child who is deaf or hard of hearing, or being a parent who is deaf or hard of hearing.