NCHAM conducted an investigation into the impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families.  This information includes:

White Paper on Privacy Regulations: How EHDI, Part C, and Health Providers can Ensure that Children and Families Get Needed Services

Survey of EHDI Program Practices Related to Federal Privacy Regulations

Survey of Part C Program Program Practices Related to Data Sharing with EHDI

State examples of Tools to Facilitate Information Exchange

PowerPoint: Federal Privacy Regulations and Information Sharing Among Programs

NCHAM has gathered examples of the following information exchange tools from several states.

• Legislation
• Memoranda of Agreement
• Coordinated Referral Forms
• Data Sharing and Reporting
• IFSP's