As part of the Video Scrapbook, there are 14 videos clips that deal with health care provider education issues related to EHDI. Transcripts of each video clip can be found below. Feel free to use any of the video clips in your own presentations.
File Size: 82 MB
Contents: 11 videos (.mpg), 1 text file (.txt) containing transcripts of videos
Transcripts of EHDI Scrapbook Video Clips
Speaker: Bee Biggs-Jarrell
Transcript: If I had the ear of my political representatives both at the state level and the national level. I would want them to know the value that it is to the child, the family and our society. That the child born with hearing loss need not be in a world of silence. Not learning as their hearing peers do. That need never happen again in this nation.
Speaker: Beth Cram
Transcript: I fully support newborn hearing screening. I greatly wish that I had access to newborn hearing screenings with Jacob. He was not an at-risk child, we had no history of deafness in our family so we wouldn't have even begun to think that we needed a hearing screening for our first child. Because we did not know he was deaf, it very much delayed the diagnosis, the formal diagnosis for autism. For that reason services for autism was not in place until he was about four-and-a-half years old. How much could we have gained with language and progression during those rich, language years had we known early on?
Speaker: Allison Emerson
Transcript: Early identification meant for us that we had the…time was on our side as it isn't for so many families. We had the time to make the choices about communication styles early. So time was given to us that is stolen from other families merely because they didn't have their child screened.
Video: Christy Herden
Transcript: It's important to do hearing screening prior to other development evaluations. In our situation for a variety reasons, one of them is that you get some really scary diagnoses when they don't rule out hearing. Scary to me in comparison to a hearing loss. It's also important because my daughter, even though she has a moderate-to-severe hearing loss, would not have raised a red flag in our pediatrician's office from a hearing loss standpoint until 36 months. All of the little screening things he would look at…he's a wonderful pediatrician we love him. . .but all the things he would look at, she did. To have it just be a routine thing. Our daughter is doing wonderful but we feel like we've lost so much time. She wasn't aided until 20 months.
Video: Candace Lindow-Davies
Transcript: What I see with parents that are told that they have a child with a hearing loss at birth they don't have all the emotional barriers that a child identified later has. Because they're not guilty, they're not frustrated, they're not still angry over not having that child identified earlier. That when they're told at birth that that child has a hearing loss they seem to move so much more quickly through the grieving process.
Speaker: Kathy Nichol
Transcript: I think that one of the things that really attracted me to this whole issue is the fact that pediatricians in general have been very focused on prevention through the years. And although this is not truly prevention because the child/infant is usually born with a hearing loss, although that is not totally true, sometimes they develop it later in life, but many children with hearing loss are born that way. And if you diagnose that early and intervene early, that child has the capacity to develop pretty normal speech and language. And that's a wonderful potential. And if they aren't picked up early and there isn't early intervention, they frequently never live up to their potential in terms of speech and language development. So from a pediatric standpoint here is a perfect opportunity to diagnose, intervene and get a good result. So it's a very attractive thing.
Speaker: Sandy O'Connor
Transcript: I would love to see it really become very successful all around the United States. I would love to see every single hospital, birthing hospital, every midwife carry out universal screening. I think it's extremely important. I think that one of the reasons that it is important is because kids need communication right away. We don't need to wait. We know that there is such a difference with kids that we find out, certainly within the first 3 months. If we can find out that information, get parents going right away it makes a huge difference in their life. It did in mine. Also I had Early Intervention; it made a huge difference in my life.
Speaker: Dolores Orfanakis
Transcript: With all of the new knowledge that we've had about the importance of early brain development, it's unthinkable that we wouldn't want children to hear much sooner than 4 years of age, 2 years of age and I would say much sooner then 6 months of age. I think they were fair in EHDI when they set that goal of having intervention with children if it was necessary to be aided by 6 months of age, but quote, "if it was my own child," I'd want it by a month of age. Hearing is the precursor, as you know, to all language development and it's just unthinkable that you would miss out on a month of something that is so essential.
Speaker: Sharon Parham
Transcript: The impact of early identification hit us, I think three years ago. I kind of expected it sooner to tell you the truth. But we went from serving three babies in one year to twenty-five babies the next. This year alone, for the first twelve to fifteen weeks, we picked up a new student, a new baby, identified weekly. Recently, matter of fact this last week, I got a phone call on five new babies. And the babies are not just the kinds of babies we served years ago. I was an early interventionist years ago and students we received very often were identified around two or three, sometimes around two, and severe to profound losses. But now our students that we are picking up are students with unilateral hearing losses, students with conductive hearing losses as well as severe and profound hearing losses, so we are serving a wide variety of students.
Speaker: Kim Sykes
Transcript: I think sometimes parents, unfortunately, receive information that is not accurate, because a hearing loss was not identified and screening did not occur first. Unfortunately sometimes there are misdiagnoses and just the frustration that parents go through with that.
Speaker: Tom Tonniges
Transcript: I've been interested in early newborn screening since I went into practice in 1977. I remember sitting on a bed, jiggling a bell. Trying to see what a baby's response was and then some new equipment in the 1980's. As we move into the 90's with the new equipment that is available it really, I felt, was a huge opportunity to make an early diagnosis and make an impact for those children and those families. So I think that the changes that we've seen over the last 5-6 years are just wonderful, for the pediatricians, for the families and for our communities because these children are being picked up early.