As part of the Video Scrapbook, there are 12 videos clips that deal with medical home issues related to EHDI. Transcripts of each video clip can be found below. Feel free to use any of the video clips in your own presentations.
File Size: 100 MB
Contents: 12 videos (.mpg), 1 text file (.txt) containing transcripts of videos
Transcripts of EHDI Scrapbook Video Clips
Speaker: Bee Biggs-Jarrell
Video: mh-biggs.mpgMedical Home
Transcript: No family leaves the hospital without an appointment with their primary care provider. Families can change their minds and they can move around, and they can change physicians. But at least we start them with the idea; here's is the physician who cared for your baby as you're being discharged. And here is when your next appointment is. So we think that's a good step forward.
Speaker: Robert Cicco
Transcript: I believe that care coordination that occurs whenever a child screens positive or does not pass his hearing screening, that coordination has to start at the hospital, be transmitted then to the child's medical home and to his primary care provider. It becomes that provider working in conjunction with the audiologist, with the early intervention services, that's going to ensure this child is in a proper medical home. My view of the medical home is that it is all those things. It is not just the primary care provider. It is the family who happens to now be dealing with the primary care provider and early intervention service, and audiologists an otolaryngologist, a geneticist and anyone who is touching that child's life. And the care that is provided to that child from all those people is done in a coordinated fashion, in a compassionate fashion, in a family centered fashion. I think that we need to remember that that medical home is not just the PCP's office, but also all those other people. The PCP's responsibility and where the PCP can be very helpful is to assure that all those other people are in fact providing that care in that same coordinated compassionate way.
Speaker: Robert Cicco
Transcript: When we get families coming into our NICU and they're trying to choose a pediatrician or a doctor to follow their child. And I say to them, "The most important thing you need is not just someone who will take care of your child when he or she is ill, it's what you're going to do whenever your child is healthy. The reason why we have doctors taking care of children and why we have pediatricians out there, is to help you over those ups and downs of being a parent and making sure that your child is learning things at the appropriate time and that they're in the best developmental environment and so forth." And as part of that, we have a responsibility to ensure that the child is as capable as he can possibly be to learn as much as he can. And that means that things like vision screening and hearing screening and so forth are done. We can't allow that to stop just because the child passed his hearing screening as a newborn so that when a family comes in and there is any concern at all, that we must act on that concern and get them rescreened.
Speaker: Janet Des Georges
Transcript: What more appropriate place for any time a family walks into a medical facility whether it be a pediatrician or their family physician or a clinic where a typical question is being asked by a nurse or a doctor is "Where are you in the screening process? Have you been screened? Have you been re-screened? What are the results of that test?" Families do respect and appreciate physicians and understand, and I think we respond to that authority that they carry within the medical community. I think that physicians could largely play a part in reducing a real flaw in our system which right now is getting families back to that rescreen.
Speaker: Melisa Engel
Transcript: I think it's important to be with a pediatrician that you feel comfortable with and is hearing your concerns, too. I feel that if you're not with a pediatrician or doctor that you feel comfortable with, or he's not hearing your issues, to leave that pediatrician and let him know why you're leaving him.
Speaker: Mark Gaylord
Transcript: We need the medical home concept to help with things such as referral to ENT, genetics and cardiology and ophthalmology. And all the other parts of medical care that need to be coordinated for these children. So I do think that it's a concept that needs to be there. There's a lot of tweaking and help with that needs to make it to where it can happen within a practice. And I think that will happen as pediatricians become better educated about the concept.
Speaker: Mark Gaylord
Transcript: The problem with medical home is that it takes time. It takes resources. It takes a very informed pediatrician. I think that for pediatricians some may feel very comfortable doing it for asthma. Some may feel comfortable doing it for systic fibrosis or other diseases. For hearing that's been more difficult because hearing involves not only governmental early intervention agencies, it involves the school, it involves a whole lot of agencies and inter-coordination of care. Matter of fact, many pediatricians don't understand who those are in their area -- how they can get help.
Speaker: Patti Freemyer Martin
Transcript: I think one of the benefits of EHDI's growth over the last decade has been that we've learned collaborative skills among professionals. And so while pediatric audiologists and pediatricans, and otolaryngologists, and speech pathologists and early interventionists had over time each established their individual areas of expertise and their "turf" so to speak, I feel that through this EHDI process we've learned the ability to collaborate with each other. And in doing that we're going to set up this safety net, so then not only do we guarantee that kids don't fall through the cracks, but then we're more vigilant through the process. Which is what is really required is some over side of some vigilance. And so it's no longer just the responsibility of the pediatrician, or the responsibility of the public school speech pathologists, or the pediatrician, or whoever it might be. Really it's a joint effort. And I think that's probably the key to ensuring that. It's not just only a single safety net, but lots of places that kids can get picked up throughout their educational experience.
Speaker: Kathy Nichol
Transcript: The real concern we have now is not just doing universal newborn hearing screening, but the follow-up. A significant number of children that are now being detected as having hearing loss are not being appropriately followed up. So we need to put the building blocks in place. And again, speaking as a pediatrician, I think there's a great opportunity to create a system where the physician or primary care physician becomes the medical home, the recipient of that information of potential hearing loss. Let them help, not direct the actual care or intervention, but know where to go. Where to direct these people to help them out. We did a really great job of that with metabolic screening. When metabolic screening first occurred in this country we agreed to be the source, the place where this information would be deposited. And then we would be able to help people go to the right places and I think we could serve a wonderful function again.
Speaker: Kim Sykes
Transcript: I think one of the challenges in creating that medical home through professionals, is being able to get all the information to them so that they are aware of the different steps that need to occur in the follow-up process. Getting the child and the family into the early intervention services. That there is Part C federal programs out there to help the family and the children.
Speaker: Tom Tonniges
Transcript: I think we've made really remarkable progress when you think in terms of how pediatrics as a profession is really working hard to be responsive to the needs of families. I think that that's probably the area where we've made the greatest advancements. That pediatricians are beginning to listen to families and seeing families as partners in the health care of their children.
Speaker: Betty Vohr
Transcript: I've talked a lot about education of pediatricians, but it also means education of everyone in that system and that means the parents. The parents need to get as much information as possible about their child, the dynamics of communicating with their child, what type of communication mode they would like to choose for their child. So that a lot of the decision making is dependent really on what the parent feels is going to be best for their child and their family. I think that if we keep two things in mind, one that this is a partnership where the parent has an equal role in the decision-making process and where we can educate everyone involved in the system, I think the right decisions are going to be made for every family.