• Home
• EHDI System
• Resources
• States
• Legislation
• About Us

Last Modified: 12/04/2019

Addressing Privacy Regulations

NCHAM conducted an investigation into the impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families. This information includes:

• White Paper on Privacy Regulations: How EHDI, Part C, and Health Providers can Ensure that Children and Families Get Needed Services [PDF]
• Survey of EHDI Program Practices Related to Federal Privacy Regulations [PDF]
• Survey of Part C Program Program Practices Related to Data Sharing with EHDI [PDF]
• State examples of Tools to Facilitate Information Exchange
• PowerPoint: Federal Privacy Regulations and Information Sharing Among Programs [PDF]

NCHAM has gathered examples of the following information exchange tools from several states:

• Legislation
• Memoranda of Agreement
• Coordinated Referral Forms
• Data Sharing and Reporting
• IFSP's

National Center for Hearing Assessment and Management
Utah State University, 2615 Old Main Hill, Logan, Utah 84322
Tel: 435.797.3584 || Questions and Comments
© NCHAM, 1999–

Many of the resources on this site are offered in various formats, such as PDF, Word, Excel, and PowerPoint. If the files don’t open on your device, you can download free viewers for these formats from Adobe (PDF) and Microsoft (Word, Excel, PowerPoint).

Please contact us for assistance if there is website material that is not accessible to you.

NCHAM Privacy Notice

As a research center at Utah State University NCHAM is supported by funds from the Utah State Legislature as well as various private, state, and federal entities. Since 2001 NCHAM has served as the National Technical Resource Center (NTRC) for all state-based Early Hearing Detection and Intervention (EHDI) programs in the United States. The work of the NTRC is funded in part by a cooperative agreement (U52MC04391) from the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) at the United States Department of Health and Human Services. Materials and activities described on this website represent many different views and opinions by stakeholders interested in improving services and outcomes for children who are deaf or hard of hearing. Authors and developers of those materials and activities are responsible for the views and content of material on this website and no endorsement by NCHAM or MCHB/HRSA is implied or expressed.

NCHAM seeks to promote dialogue about issues related to hearing loss in children including research findings, legislation, treatment & diagnosis, etc. NCHAM does not necessarily endorse the information contained in the material posted in the social media platforms found on this website. Any views or opinions presented remain the responsibility of the originating media source.