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Last Modified: 03/10/2022

Interagency Collaboration, Data Sharing, and Privacy Issues

NCHAM conducted an investigation into the impact of privacy regulations on the exchange of information among EHDI, Part C, health providers, and families. This information includes:

• White Paper on Privacy Regulations: How EHDI, Part C, and Health Providers can Ensure that Children and Families Get Needed Services [PDF]
• Survey of EHDI Program Practices Related to Federal Privacy Regulations [PDF]
• Survey of Part C Program Program Practices Related to Data Sharing with EHDI [PDF]
• State examples of Tools to Facilitate Information Exchange
• PowerPoint: Federal Privacy Regulations and Information Sharing Among Programs [PDF]

NCHAM has gathered examples of the following information exchange tools from several states:

• Memoranda of Agreement
• Data Sharing and Reporting
• Coordinated Referral Forms

National Center for Hearing Assessment and Management
Utah State University, 2615 Old Main Hill, Logan, Utah 84322
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NCHAM Privacy Notice

As a research center at Utah State University, NCHAM is supported by funds from the Utah State Legislature as well as various private, state, and federal entities. Since 2001 NCHAM has served as the National Technical Resource Center (NTRC) for all state-based Early Hearing Detection and Intervention (EHDI) programs in the United States. NCHAM is committed to promoting respectful dialogue about how to improve services for children who are deaf or hard of hearing. The work of the NTRC is funded in part by a cooperative agreement (U52MC04391) from the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA) at the United States Department of Health and Human Services. Materials, presentations, and other activities disseminated by NCHAM represent many different views and opinions by stakeholders interested in improving services and outcomes for children who are deaf or hard of hearing. Developers, authors, and presenters of those materials and activities are responsible for the views and content of their material and no endorsement by NCHAM, USU, or MCHB/HRSA is implied or expressed.